Just Following Along

Today begins a new week, one in which the results of the biopsy will come in. They took nine bits out of a cancerous lymph node two weeks ago, though it seems like two months ago.

But today brought word of the first analyses, and what we heard was good news. Though they are still looking for certain mutations that will swing the door open to the new, effective immunology treatments, they did have one piece of good news. The numbers showed that Nelson’s immune system is extra-strong for his age, which should help him during immunology treatments—should he qualify for them.

Meanwhile, they told us he’ll probably start chemotherapy tomorrow, even before all the biopsy results are in, possibly alongside immunology. If they give him the first blast before he leaves the hospital tomorrow, it will be a helpful kick-start (the nurse’s words) to his long-term treatment.

One new problem is that Nelson’s veins are flattening. Drawing blood morning and evening is getting more and more difficult. The staff has to dig for it, and Nelson has bandage wraps around multiple places in both arms. He’s a good patient and endures without complaint, but it’s hard to watch them try and try.

Today they wheeled Nelson from his room multiple times for more tests that they can compare to last week’s information. Sadly, we heard the words “fast growing” today, an invitation to lose heart. But God wants us always to be on a blessing-watch, and today he gave us a special one.

Though no young children are ever allowed on the oncology floor, we asked Nelson’s nurse if maybe just once we might bring Will up to see Nelson—only briefly, and in the lounge at the end of the hall, not in his room.

The nurses are a fantastic crew, and this one went to work on it immediately. Today as Ann Sophie, Will, and I entered the hospital, we were stopped by the doorkeepers like everyone else. Ann Sophie mentioned that the baby should be allowed in today, expecting opposition. But the woman at the desk brought up Nelson’s patient-page and quickly said, “Yes. I see that here. Go right up.”

We skipped the lounge and went directly to Nelson’s room. No one stopped us. Will was wearing his onesie that said DAD’S BEST BUDDY and charmed all the nurses and other visitors along the way. His daddy was very glad to see him and vice versa. And thankfully Will was an angel throughout the hour we were there.

 

 

Another blessing was that the staff told us they’d gotten permission for Will to be on the cancer floor any time we wanted to bring him…a standing order of sorts.

And one more good thing was that the staff had finally gotten ahead of Nelson’s pain. When we came, he was relaxed and content, a big gift to him—and to us. He was sleepy, since they had literally doubled his pain meds, but that was OK, too.

And so we forge ahead, pleading with God for more years with Nelson, and doing our best to follow his lead.

“Your ears will hear a voice behind you saying, ‘This is the way. Walk in it’.” (Isaiah 30:21)