Little Victories

As we suspected, Nelson is pressing the hospital staff for an exit-date from the hospital. Now that he’s been transferred from the ICU to a regular hospital room, there’s a new set of physical goals to reach. For example, he needs to be weaned off the high density oxygen without his numbers slipping below 95. And he needs to be able to walk around without his heart rate rising above 120. Nelson is doing everything in his power to meet these requirements, but most of it is out of his control. He did have several victories today, though.

1. The cancerous nodules in both lungs that were “too numerous to count“ have all significantly shrunken.
2. The swollen lymph nodes on both sides of his neck have also gotten smaller. They can’t be felt anymore from the outside.
3. His platelet count is up and all other blood numbers are stable.
4. He needs one less blood pressure medicine to keep his pressure up.
5. Two catheters have been removed, along with one IV line.
6. The lab lady was able to find a vein on her first try for this morning‘s blood draw.
7. Pain meds are no longer being given by IV but only by mouth.

But sadly, today wasn’t only about victories. We received one negative piece of news that both shocked and disappointed us: Despite being on blood thinners, Nelson now has a large blood clot under his clavicle bone area.

When his team gave him the details about this, he became overwhelmed with anxiety. After the doctors left, leaving his mind swirling, he called and told us he couldn’t handle “all this“ anymore, because there was no end in sight. They had asked him questions about making choices for moving forward, and he had been unable to organize his thoughts enough to answer. He seemed on the verge of panic, so we quickly mobilized and were in his room in just minutes.

He was still feeling anxious, telling us he felt like his hospital room had become a prison he could never get out of. But he was relieved to see us, especially his beloved Ann Sophie.

Just before we arrived, they had done a 90 minute ultrasound of his swollen arm, looking closely at the clot. They learned it was not just a small, marble-sized clot but one that reaches into four different veins: the internal jugular vein, the subclavian vein, the auxiliary vein, and the upper arm cephalic vein.

As a result, blood is flowing into Nelson‘s arm and legs but can’t get out. His limbs are so swollen now that he virtually can’t bend them.

The head nurse came in to answer more questions, bringing a print-out to help us understand. Once we saw the scope of the problem, we quizzed her at length about how to “fix it.“ She told us three teams of oncology experts would be arriving tomorrow morning: vascular, pulmonary, and radiation. All of them are familiar with Nelson‘s case, and together with him, they will structure a plan. We hope to be there listening in.

Before we left tonight, Ann Sophie questioned Nelson‘s nurse about his anti-anxiety meds, and they promised to be sure he had enough. Nelson never asks. He just carefully thanks every person who enters his room, telling them what a good job they’ve done and how he’s thankful for their care. This goes for everyone from medical people to food servers to cleaning crews. We’ve watched him bring light and goodness to each one.

Nelson is making a difference in the lives of many at the Clinic. As the old Sunday school song says, “Brighten the corner where you are.“

And despite today’s bad news, that’s what he’s doing.

“You are light in the Lord. Walk as children of light.” (Ephesians 5:8)

Nelson’s Sister Linnea, Conclusion

All Christians are called to disciple others. We’re all supposed to influence each other for good. But some people do it more than most, and Nelson is that kind of Christian. (I wonder how many of you reading this right now would say Nelson discipled you in some way? Probably a lot!)

I’m not sure who I would be without my big brother. I definitely would not have gone to YWAM, so I wouldn’t be Adam’s wife and we wouldn’t have our six wonderful kids.

I’m also not sure where I would be spiritually. As a kid, I thought of Christianity as a lifestyle. We were good people and we went to church every Sunday because it was the right thing to do. But Nelson showed me that a true life of faith is so much more than that! It’s an adventure.

It’s about meeting with God when you first wake up. You open your Bible, read and pray, but you also listen. You wait for God to speak, and you trust that He will guide you. You expect that God has good things planned for you, and you look for His hand in every circumstance.

People in YWAM have almost no money, but somehow they go all over the world! I watched Nelson do it and then I did it, too. During my YWAM years, God took me to China, Taiwan, Nepal, India, Japan, Thailand, and New Zealand. In between, I lived in Hawaii and then Montana.

I held the sweetest orphan babies, hiked through the Himalayas, and met Christians who had left everything familiar to be lifelong missionaries overseas.

Those years shaped me in a way nothing else could have. How can you complain about a van without air conditioning after you’ve watched a mother in Calcutta nurse her baby while lying in the gutter on the side of the road on a 90 degree afternoon? I will always be grateful for the gift of YWAM in my twenties and the brother who encouraged me to go.

Right now our children are ages 3 to 13, and they all love their Uncle Nelson. We live way down in Florida, but Nelson still finds a way to visit. He has always gone out of his way for people, including us. Our six year old is named after his uncle, and out of all our kids, little Nel asks me about his Uncle Nelson the most.

I read updates from the blog to the kids in the mornings, and we then pray together for him and Auntie Sophie and baby Will. Even little kids understand the power of Nelson’s thankful spirit right now. Even now in this season of battling cancer, Nelson continues to influence the people who know and love him, always toward God and His faithfulness.

I am thankful to have a little time in Minnesota this week, to chat with Nelson and Sophie and hold baby Will as much as possible! And I’m thankful for the things I’ve learned from my big brother—mostly that a life following God is the best kind of adventure, full of laughter and strong coffee, wild stories in faraway places and friendships that never end.

It’s a life of peace and gratitude even when circumstances are crushingly hard. Nelson has suffered through so much this year, but he is still the Nelson we all know and love. Still strong, still optimistic, still up for a good conversation about what God is doing in our lives.

Inside Out

Nelson is doing well and feels fairly good. He’s got energy he didn’t have two weeks ago, and today the three of us (four with Will) ran a string of errands during which Nelson never had to sit one out. He’s continuing to meet his five daily goals, and today he ticked off lots of number four’s.

Though the swelling in his tissues continues to worsen and pop up in new places, it isn’t causing pain but is more of an inconvenience. Tomorrow may include several scans to scope out any developing problems.

Overall, he’s doing beautifully, but he’s very tired. His immediate family is tired, too, along with the rest of us. We’re all tired. Unfortunately, cancer never gets tired. It always has the energy to multiply, attack, and relocate without stopping to rest.

When I look at Nelson, I see pretty much the same guy on the outside, but doctors describe chaos on his insides. A war is waging between bad cells and good, both desiring dominance. Evil is fighting against good.

This morning as I was getting ready for the day, I heard Nelson singing in the living room. It was a country tune that revealed a joyful heart. Though he’s got cancer in multiple places, it’s failing in its attempt to dominate him.

Nelson is in a physical crisis but not a spiritual one. His spiritual life is healthy and whole. Actually, it’s flourishing. Why? Because his inner heart, his soul, and his spirit, are being influenced by God’s Holy Spirit, and that Spirit is injecting new life and fresh hope into him every day.

Satan works overtime to kill people, to steal their hopes, to destroy their relationships. But ultimately he has to answer to God Almighty. And God Almighty says, “Letting [my] Spirit control your mind leads to life and peace.” (Romans 8:6)

Nelson has invited the Spirit to control his mind, which is why his inner self is characterized by life and peace.

But what if he was going it on his own, without the governing Spirit of God within him? The best he could do would be to rely on doctors, test results, drugs, and palliative care. Nelson is incorporating those things, too, but his #1 source of stability is the Lord himself.

“God will give life to his mortal body by this same Spirit living within him.” (Romans 8:11)