T-shirt Time

I have a confession to make. Both Nate and I sleep in t-shirts. Although I have memories of frilly nighties that looked good, they all had scratchy seams. Nate remembers wearing guy-style pajamas with drawstrings and chest pockets. (We still wonder what he was supposed to keep in those pockets while sleeping.)

These days it’s tough to climb out of bed before dawn and leave our t-shirts behind, but no matter how difficult the day, we know their soothing comfort will be waiting at the end of it.

Today we had three medical tasks to accomplish. First was a blood draw, then an appointment with the head of our chemotherapy team, and lastly, radiation treatment #6. On paper it doesn’t sound like much, but pacing through it is like pushing a boulder uphill.

By mid-morning we were listening to our chemo doctor describe a study being conducted on pancreatic cancer patients. Nate had been “invited” to join this exclusive group of 15 participants. As the doctor described it, signing on for a new and controversial combination of chemo drugs would extend his life. He wouldn’t say by how much, but extending life sounded wonderful to both of us.

When he said, “There might be some extra discomfort,” I thought of our comfortable t-shirts. Nate’s life has been overloaded with discomfort during these last two weeks. Adding more didn’t sound very good. What he needed was more t-shirt time.

As we left the doctor’s office, he handed us six typed pages detailing the study, along with a signature form if we chose to participate. While Nate was getting x-rayed, I studied the study. Potential side effects filled one whole page, a list written in prose style rather than as a column, to camouflage how many there were.

Harsh words jumped from the page: “risk of bleeding, abnormal function, blood infection, inflammation, kidney failure, mouth sores, severe allergic reaction, unforeseeable side effects, potentially serious, long-lasting, permanent,” and the list continued. Also described were endless blood draws, scans and tests to monitor responses to the new drug cocktail. These translated to scores of hours rushing to appointments and waiting in doctors’ offices.

I decided to wait on presenting these findings to Nate, who was too worn to hear them just then. As we buckled our seat belts to leave the hospital, he sighed. “I’ve just had it.”

“I’m with you,” I agreed.

Finally back home eight hours after we’d left, we both napped and then enjoyed a nourishing dinner brought by our generous next-door-neighbors. As a fire crackled, we sat in a circle with our older kids and talked about the study. I read from the six pages and each person contributed an opinion.

Listening to our grown children offering excellent counsel, I was reminded of the blessing they are to Nate and me. We value their opinions and common sense. They are, well, a comfort. Nelson suggested we pray, after which the vote on the study was unanimous: don’t sign up.

We look forward to the end of radiation, possibly followed by limited traditional chemotherapy. After that it will be all about just staying home and relaxing together in comfy t-shirts.

“When you lie down, you will not be afraid; when you lie down, your sleep will be sweet.” (Proverbs 3:24)

12 thoughts on “T-shirt Time

  1. Oh we love you so much & continue to pray for you several times daily!!! Praying today goes smoothly & that God continues to show Himself….

  2. Praying for you all. It is a beautiful picture of all of you sitting in that circle by the fire. God’s provision is not confined to “new studies” as his mercies are new every morning.

  3. Margaret –
    Those comfy t-shirts sound like a balm to your souls. Terrific that your kids can share in these decisions. We continue to pray and send our love from Raleigh.

  4. My thoughts have been with you. It is hard to know exactly how to pray, but I do. If I could help reduce Nate’s pain,
    by sharing it — I would.
    Phil. 1:6

  5. Dear Nate and Margaret,
    I was hoping you would make the decision that you made, and also so thankful you have your dear family there for you. Please know we pray and think of you so often each day. May the joy of the Lord be your strength.

  6. You don’t know me but I am a brother in law of Marge Bryant. I’ve just completed 5 months of chemo treatments for lymphoma, and my immediate response when reading the possible side effects of this new treatment was DON’T! I will be praying for you all as a fellow “sojourner”.

  7. What a wonderful picture of your family surrounding you with prayer love and comfort. Hard decisions are easier with that combination along with God’s wisdom!

  8. Oh how I LOVE the t-shirt thing..long ones-like- knee length. Fire crackling; sounds wonderful, cozy, and in our 90 degree weather…something to look forward to on really cold nights…if they ever get here.
    Good decision about treatment; still praying daily . Celebrate with a ‘Thanksgiving Dinner’..traditional !!

  9. You are in my thoughts and prayers daily. Thank you for opening yourselves up to share this journey with all of us.

  10. What an amazing journey your family is on! There are so many God-things happening. Reading your blog, Margaret, is almost like reading a novel. As I near the end of each “chapter” I can hardly wait to see what God will do next. What a precious scene to imagine all of you gathered around the warm fire, discussing the possibility of experimental chemo drugs entering the body of your beloved husband and father. Good decision to not sign up. The comfy T-shirts remind me of Deut. 33:27: “The eternal God is your refuge and underneath are the everlasting arms.” Those strong arms are around you, supporting and carrying you through each phase of this journey. A great host of your family and friends who love you dearly watch and wait, praying that the journey will not be too hard or too long. And that God’s grace will be sufficient for each step.